Health Equity in Dementia Care and Research

The Lived Experience Panel is a coordinated effort between the National Institute on Aging (NIA) IMPACT Collaboratory and the Alzheimer’s Association.

The Lived Experience Panel represents a diverse community of people living with dementia or caring for people living with dementia. The panel is composed of up to 9 people, including:

  • Three people with a documented diagnosis of early stage Alzheimer’s, Mild Cognitive Impairment (MCI) or other early stage dementia.
  • Three care partners/caregivers representing his or her own experience caring for an individual living with dementia.
  • Three care partners/caregivers (proxies) who can represent the perspective of one or more individuals living with middle or late stage dementia or who are deceased.

IFC Co-Founder Willetha Barnette is a 2022-2023 panelist, and her participation was recently published in the Health Equity Team’s Lived Experience Panel Report.

Lived Experience Panel Report

The report was also highlighted in the Gerontological Society of America’s weekly newsletter. Please click here to learn more about the Lived Experience Panel.